Why is it that there’re so many things nobody writes or talks about? Especially in regards to life changing events. After I had The Boy I remember making a long list about all the things that none of the books or my friends told me about pregnancy, child birth and motherhood. The same thing with marriage. And now, I’m finding it holds true with watching someone you love die as well.
There’s so much written about the grieving process. About the fear and the sadness and the guilt and the other well documented emotions that are typically found camped out around death. There’s less written about the process of watching someone die. But it’s still there. The process of watching the body shut down and everything that goes with that. There’s even a little bit written about how hard it is to watch someone you love diminish, decline, disintegrate, deteriorate and every other “d” word having to do with the state that occurs when one’s body betrays them and starts shutting down from the inside out.
But so far, I’ve not found much written about the horrors of the mind that come along through all of these processes. And there is so much bandying about in my mind that I just cannot hold onto anymore.
I cannot hold onto the images that float, unbidden, into my mind of my dad slowly mummifying from the inside out because his organs are giving up. The horrifically detailed pictures I have of his liver and lungs and heart slowly petrifying and then turning to dust as he wonders how to control the pain.
I cannot hold onto the guilt of wondering when my part in all of this will be done. When do I get to stop taking care of my parents?
I cannot hold onto the idea that this is all my job. That I have to be everything to everyone every time. Can I put down something down without that person or activity thinking I no longer care?
These are the things that make me feel alone. But like my Dad’s not the first dad to die of cancer, I have to know that I’m not.
Showing posts with label sickness. Show all posts
Showing posts with label sickness. Show all posts
4/10/10
4/8/10 - Seafood and Recap
My mom has been trying to do something nice for me. And I keep thwarting her efforts. Mostly because what she’s been trying to do requires the expenditure of money that’s just not necessary. But regardless, she’s starting to get irritated with me I think. So she’s taking me and the kids to dinner tonight. At Red Lobster. I’ve been craving seafood for weeks and it’s the only seafood restaurant in town so off we go.
My Dad had a doctor’s appointment today with his main doc to debrief and reassess after last weekend’s debacle as well as the doc being out of town for the last two and half weeks. The doc was irritated that everything was handled the way it was and was also irritated that his prescription of a gout medication made everyone assume that my Dad had been diagnosed with gout. I kind of wanted to tell him to either get over himself or else write better diagnostic notes in the file. But he’s also endeavored to mess about with my Dad’s meds, so we’ll see how it goes. He’s taking my Dad off the blood thinners so that he can switch him to anti inflammatories and is switching his pain med to a slow release pain patch instead of the every 4 hours morphine he had been on. I’m worried about taking him off the blood thinners as that opens him up to risks of heart attack and stroke. But hopefully the benefits outweigh the risks. And the doc said we’d know the benefits fairly soon, so if they don’t outweigh, then he’ll go back to the blood thinners. It’s all such experimentation at this stage, which I find utterly infuriating. I mean, my dad has to pay the price of his comfort so that the docs can figure all of this out, in a case that is not unique that they’ve all seen so many times before and still can’t get right. And when my Dad has little more than his comfort left, I tend to get my hackles raised when they start messing with it.
So I’m keeping my fingers crossed and looking forward to scallops this evening.
My Dad had a doctor’s appointment today with his main doc to debrief and reassess after last weekend’s debacle as well as the doc being out of town for the last two and half weeks. The doc was irritated that everything was handled the way it was and was also irritated that his prescription of a gout medication made everyone assume that my Dad had been diagnosed with gout. I kind of wanted to tell him to either get over himself or else write better diagnostic notes in the file. But he’s also endeavored to mess about with my Dad’s meds, so we’ll see how it goes. He’s taking my Dad off the blood thinners so that he can switch him to anti inflammatories and is switching his pain med to a slow release pain patch instead of the every 4 hours morphine he had been on. I’m worried about taking him off the blood thinners as that opens him up to risks of heart attack and stroke. But hopefully the benefits outweigh the risks. And the doc said we’d know the benefits fairly soon, so if they don’t outweigh, then he’ll go back to the blood thinners. It’s all such experimentation at this stage, which I find utterly infuriating. I mean, my dad has to pay the price of his comfort so that the docs can figure all of this out, in a case that is not unique that they’ve all seen so many times before and still can’t get right. And when my Dad has little more than his comfort left, I tend to get my hackles raised when they start messing with it.
So I’m keeping my fingers crossed and looking forward to scallops this evening.
4/5/10 - Projection
From a purely selfish point of view, I am so ready to go home I could scream. Everywhere I look I am surrounded by sickness. My Dad is doing a bit better, but still nowhere near 100% and at this point, I’m not sure he’ll ever get back there. This thing with the meds and everything that came with it has really dented him in a very real and lasting way I think. And it’s brought home how fragile he is getting. The Girl is starting to feel better, but is still coughing something fierce. The Boy has started coughing. And my Mom has been dealing with this weird vertigo thing for the last several days as well. I’m feeling fine and that puts me squarely in care taker mode for everyone in the house. I’m happy to do it; I’m well equipped to do it. I’m just tired.
I miss my home and everything that comes with it. So selfishly, I’m ready to let everyone fend for themselves so I can go home and bury myself in my down comforter. Knowing how much my family needs me right now, I’m doing laundry and dishes and cooking my family’s favorite stuff.
And I am coming to terms with the fact that the kids and I don’t get to go anywhere at all this week either. With the added expense of my speeding ticket, we’re seriously strapped until my husband gets paid again next week. So the kids and I are homebound. Which is never a wonderful prospect for any of our sanity. I’m praying for good weather and for the insane amount of wind that showed up today, to dissipate throughout the week. I’m hoping that we can get through this week without much screaming and kicking. I’m hoping that we can all just settle in, relax and have a good week.
And then I re-read this post and think, “jiminy Christmas, could I be throwing myself any further into the future?” Yeah. Time to reel it back in and just be here today. Tired. Worried. Missing my life. Uncomfortable. Ready for some ease. And tired. Did I mention tired? Oh yeah, and brain dead.
I miss my home and everything that comes with it. So selfishly, I’m ready to let everyone fend for themselves so I can go home and bury myself in my down comforter. Knowing how much my family needs me right now, I’m doing laundry and dishes and cooking my family’s favorite stuff.
And I am coming to terms with the fact that the kids and I don’t get to go anywhere at all this week either. With the added expense of my speeding ticket, we’re seriously strapped until my husband gets paid again next week. So the kids and I are homebound. Which is never a wonderful prospect for any of our sanity. I’m praying for good weather and for the insane amount of wind that showed up today, to dissipate throughout the week. I’m hoping that we can get through this week without much screaming and kicking. I’m hoping that we can all just settle in, relax and have a good week.
And then I re-read this post and think, “jiminy Christmas, could I be throwing myself any further into the future?” Yeah. Time to reel it back in and just be here today. Tired. Worried. Missing my life. Uncomfortable. Ready for some ease. And tired. Did I mention tired? Oh yeah, and brain dead.
4/4/10 - Happy Easter!
Oh yeah, that’s right, it’s Easter. Happy Easter! I had almost totally forgotten about it. It’s just such a holiday that’s not on my radar really. I’m not religious so it holds little personal meaning for me in that respect and it always creeps up on me. More so this year than most given everything else that’s going on. My mom sent me to the grocery store yesterday (yes, on a Saturday, again, and the Saturday before Easter, so not a good idea) to restock the fridge and get a few things for the kids for an Easter egg hunt this morning. This morning still arrived as a bit of a shock.
My Mom had taken The Boy outside to enjoy the gorgeous morning while I set up the indoor egg hunt and strategically placed their bigger Easter gifts. The Girl woke up lat morning after falling back asleep on the couch and came to me with an egg in hand saying “What this?” She caught on quickly though as she kicked off the hunt with a good head start on her brother. They had a good time.
Dad got up after the hunt was over and was still not doing well, so Mom called the new on call hospice nurse to request a home visit today. Dad moved as little as possible and read the paper. The Girl played with her new Barbie princess and horse and The Boy begged my Mom shamelessly to get started on his new medieval castle herb garden which would require painting. It was a normal Sunday morning except for the pain and discomfort etched across my Dad’s face.
But my Dad has gotten better as the day has gone on, The Girl seems to be fever free although her cough has evolved into a nasty wet thing that needs little provocation, The Boy had a grand time painting and planting his indoor garden. The hospice nurse arrived and took a thorough account of my Dad ending with a long talk about pain management and a declaration that the gout med should be utterly discontinued.
Now it’s on to dinner and sneaking the ears off the kids’ chocolate bunnies.
My Mom had taken The Boy outside to enjoy the gorgeous morning while I set up the indoor egg hunt and strategically placed their bigger Easter gifts. The Girl woke up lat morning after falling back asleep on the couch and came to me with an egg in hand saying “What this?” She caught on quickly though as she kicked off the hunt with a good head start on her brother. They had a good time.
Dad got up after the hunt was over and was still not doing well, so Mom called the new on call hospice nurse to request a home visit today. Dad moved as little as possible and read the paper. The Girl played with her new Barbie princess and horse and The Boy begged my Mom shamelessly to get started on his new medieval castle herb garden which would require painting. It was a normal Sunday morning except for the pain and discomfort etched across my Dad’s face.
But my Dad has gotten better as the day has gone on, The Girl seems to be fever free although her cough has evolved into a nasty wet thing that needs little provocation, The Boy had a grand time painting and planting his indoor garden. The hospice nurse arrived and took a thorough account of my Dad ending with a long talk about pain management and a declaration that the gout med should be utterly discontinued.
Now it’s on to dinner and sneaking the ears off the kids’ chocolate bunnies.
4/3/10 - Not a Good Day
My Dad’s doctors decided to start monkeying with his meds and now he is paying a high price for their experimentation. It’s so easy to blame them for his discomfort. It’s so easy to point fingers, especially at hospice, and demand that it be fixed. Because to watch my Dad suffer like he has today is by far the most horrible part yet of this whole process. My Dad has had increasing swelling and pain in his joints, particularly his elbow, knee and ankle joints. After some blood work it was decided that he had gout. Over the past week or so his pain and swelling has been getting really bad and they decided to up the gout medication they had him on. Worst. Decision. Ever.
He could hardly walk today. He was shaking so badly he couldn’t hold a water glass. He was in intense pain and his stomach was screwed beyond belief. He spent most of the day in bed. I spent most of the day shooing the children outside or into my mom’s yoga studio to play and watch TV just to get them out of the house. And worrying. There was lots and lots of worrying.
The Girl is not any better and I knew I should take her far away from my Dad, especially given his sudden turn for the worse. But I could not leave him like this. So I’m staying and keeping my fingers crossed that I don’t compound this by giving him her sickness.
My Mom has been on the phone off and on with the on call hospice nurse all day in amidst sitting with my Dad and getting him to drink as much as possible as they think the shaking and chills are coming from dehydration. I’ve been sitting at the kitchen table mostly, feeling helpless. And feeling that I maybe don’t want to be around for this part. As awful as that confession makes me feel and sound, I don’t know if I can sit and watch him suffer like this as the end draws nearer. And I don’t know if there’s room at his bedside for more than one. I just don’t know.
He could hardly walk today. He was shaking so badly he couldn’t hold a water glass. He was in intense pain and his stomach was screwed beyond belief. He spent most of the day in bed. I spent most of the day shooing the children outside or into my mom’s yoga studio to play and watch TV just to get them out of the house. And worrying. There was lots and lots of worrying.
The Girl is not any better and I knew I should take her far away from my Dad, especially given his sudden turn for the worse. But I could not leave him like this. So I’m staying and keeping my fingers crossed that I don’t compound this by giving him her sickness.
My Mom has been on the phone off and on with the on call hospice nurse all day in amidst sitting with my Dad and getting him to drink as much as possible as they think the shaking and chills are coming from dehydration. I’ve been sitting at the kitchen table mostly, feeling helpless. And feeling that I maybe don’t want to be around for this part. As awful as that confession makes me feel and sound, I don’t know if I can sit and watch him suffer like this as the end draws nearer. And I don’t know if there’s room at his bedside for more than one. I just don’t know.
4/2/10 - Fever Watch
Yep. The Girl is sick. My mom sent The Boy to get me before the sun was up after The Girl came to get her up with a nasty croupy cough and fever. So in I came and she and I sat in a hot, steamy bathroom for about 30 minutes and then got some prednisone and Motrin into her. By this time she was calm enough to go back to sleep for a bit (Thank God). When I got up the bark was gone from her cough, but she was still not feeling well at all. Which is so not a good thing on a couple of different levels. The first of which is, of course, that I don’t want her to get sick at all. The second is that I can’t have her being sick, especially with a respiratory sickness, around my dad. So we’ll ride out today and if she’s not better by tomorrow, then I’m afraid we’ll have to go home a week early. We’ll just have to wait and see.
I am not entirely sure where she managed to pick up a sickness in the middle of nowhere, but she did. I knew something was coming because her dry, out of whack asthma cough came back a couple of days ago and then before bed she said good night in a hoarse voice. I can spot the croup a mile away and I knew it was coming. But I still hoped it wouldn’t.
So we’ve spent the day watching movies and cuddling. Which is fine by me as I’m just about as tired as The Girl is/should be. And there’s a part of me that is ready to go home. I miss my husband. I miss my bed. I miss the Wi-Fi in my house. I miss my friends. But I’m here to be with my Dad and that’s what I’m trying to do. So if I can get The Girl well in 24 hours we’ll stay. And if nothing else, for the first time in a month a story idea came to me whilst sitting in the dim, wet bathroom early this morning. That is a very good thing.
I am not entirely sure where she managed to pick up a sickness in the middle of nowhere, but she did. I knew something was coming because her dry, out of whack asthma cough came back a couple of days ago and then before bed she said good night in a hoarse voice. I can spot the croup a mile away and I knew it was coming. But I still hoped it wouldn’t.
So we’ve spent the day watching movies and cuddling. Which is fine by me as I’m just about as tired as The Girl is/should be. And there’s a part of me that is ready to go home. I miss my husband. I miss my bed. I miss the Wi-Fi in my house. I miss my friends. But I’m here to be with my Dad and that’s what I’m trying to do. So if I can get The Girl well in 24 hours we’ll stay. And if nothing else, for the first time in a month a story idea came to me whilst sitting in the dim, wet bathroom early this morning. That is a very good thing.
4/1/10
3/29/10 - Caretaker
I’m a caretaker. I always have been. For as long as I can remember I am always the first to wonder if someone is ok if I see them hurting, no matter if I know them or not. I latch onto babies because I know that they need to be taken care of. I’m just a care taker. Which is a good thing considering the rigors my children have put me through. If I weren’t a natural born care taker, they’d be hurtin’ kiddos right about now. There was a part of me that thought once upon a time that being a caretaker made me weak in some way. That the act of caretaking surrendered my power to the person I was taking care of; that by putting myself at their disposal that I was somehow expressing codependence instead of the inherent strength it takes to honestly put someone else before yourself.
Now I know that was all bullshit of course. I embrace my caretaking abilities on a daily basis. And it turns out to be an extraordinarily good thing when you have one parent have a massive heart attack one day, move in with you to recuperate for 3 weeks another day and then six months later have the other parent diagnosed with end stage lung cancer.
So here I am, taking care of my Dad. By cooking all of his favorite food for him while he still has an appetite and wants to eat. By doing things around the house to make his life easier. By helping to keep track of meds and new symptoms to tell the hospice nurse. All of these everyday things that seem so simple but are the best way I know how to take care of him right now. Because all of these things still allow me to be his daughter whilst doing them. Despite my caretaking proclivities, I have no desire to morph into a full time nurse to my father. I just want to be his daughter. Love him as his daughter. Support him as his daughter. It’s a delicate balance to strike to be sure. But I hope I’m at least in its general vicinity.
Now I know that was all bullshit of course. I embrace my caretaking abilities on a daily basis. And it turns out to be an extraordinarily good thing when you have one parent have a massive heart attack one day, move in with you to recuperate for 3 weeks another day and then six months later have the other parent diagnosed with end stage lung cancer.
So here I am, taking care of my Dad. By cooking all of his favorite food for him while he still has an appetite and wants to eat. By doing things around the house to make his life easier. By helping to keep track of meds and new symptoms to tell the hospice nurse. All of these everyday things that seem so simple but are the best way I know how to take care of him right now. Because all of these things still allow me to be his daughter whilst doing them. Despite my caretaking proclivities, I have no desire to morph into a full time nurse to my father. I just want to be his daughter. Love him as his daughter. Support him as his daughter. It’s a delicate balance to strike to be sure. But I hope I’m at least in its general vicinity.
3/11/10
Heartbreak
So The Girl took the weather delay as a cue and spiked another fever last night. After being on antibiotics for three days. I took her back to the doctor this morning and she changed the antibiotic to something stronger and more broad spectrum. Although we’re both starting to think that this sucker is viral. Which really bites, because that means we just have to wait for it to pass. And it’s been a week now. So even though it scared the crap out of me, I tried a different tactic this afternoon and did not treat her fever. I thought maybe that if it got high enough it would burn itself out. It topped out at 103.5, which is .1 below the temperature she had a seizure at so I was terrified, but it eventually started coming down a little. When we just put her to bed it was down to 102.3. Who knows if there’s anything to my theory or not. I just know I’m ready for her to be done with this now. She is so completely miserable and it just breaks my heart to watch her feel so punk.
Also today, I found out a good friend of mine from college has been missing since Tuesday. And that is such a “those things don’t happen to me or people I know” kind of thing. I mean she’s always been a crazy girl, but never the disappear and not at least check in with her family kind of crazy. I’m just hoping against hope that she’s safe and sound somewhere but out of cell phone range. Or maybe a new boyfriend whisked her away on a surprise vacation and forgot to tell her family. I’m hoping that she is not in trouble or in pain somewhere scared out of her wits praying to be rescued. It’s a scary thing and it breaks my heart to think about.
So it seems that my heart is breaking in all sorts of ways today. Heart break and worry abound today it appears. So join me in asking the powers that be to get my daughter well quickly and to protect J and keep her safe.
Also today, I found out a good friend of mine from college has been missing since Tuesday. And that is such a “those things don’t happen to me or people I know” kind of thing. I mean she’s always been a crazy girl, but never the disappear and not at least check in with her family kind of crazy. I’m just hoping against hope that she’s safe and sound somewhere but out of cell phone range. Or maybe a new boyfriend whisked her away on a surprise vacation and forgot to tell her family. I’m hoping that she is not in trouble or in pain somewhere scared out of her wits praying to be rescued. It’s a scary thing and it breaks my heart to think about.
So it seems that my heart is breaking in all sorts of ways today. Heart break and worry abound today it appears. So join me in asking the powers that be to get my daughter well quickly and to protect J and keep her safe.
3/9/10
3/8/10 - Fever on the Run
Ok, so an ear infection is the culprit. Our pediatrician gave The Girl a thorough going over and she checked out totally healthy except for the fact that one of her ears was flaming red and unhappy. So she’ll be on antibiotics for about 10 days and then we should be done. I think probably the fever will be broken for good when she wakes up the in the morning. Which means the plan for right now is to get the kids and me down to New Mexico by Thursday. That is about a week and half earlier than I had originally planned, which means taking them out of school, but it’ll be ok. I think The Boy is more than ready for a break anyway, although little does he know that I’m having his teacher put together a whopping packet of homework for him to work on while he’s gone. Hopefully that will keep the rust off his brain.
And my sweet friend P made us dinner tonight! How cool is that? To make an awesome surprise even better, she made her famous chicken and quinoa with an awesome spinach salad and a chocolate cake. I was in heaven. Seriously, P, you rock the casbah.
So now I’m in get ready to leave my house for a month mode. Which means finishing and returning library books. Getting new child-friendly audio books to listen to on the drive. Getting everyone’s laundry done so we have clean clothes to wear. Pulling any recipes I may want to make while I’m down there. All of the stuff that makes me feel just a little bit better about leaving my life here for a month, or more.
And, if you read my 52 in 52 blog, you will have noticed that I’m quickly falling behind. I am sorry; I’ve just got nothing right now. I think I’m in such a state of overload with everything going on right now that my creative juices are pulling a deer in headlights move. I’ll catch up soon though and get back on track, I promise. In the meantime, if you have any story ideas to share, I’d love to hear them.
And my sweet friend P made us dinner tonight! How cool is that? To make an awesome surprise even better, she made her famous chicken and quinoa with an awesome spinach salad and a chocolate cake. I was in heaven. Seriously, P, you rock the casbah.
So now I’m in get ready to leave my house for a month mode. Which means finishing and returning library books. Getting new child-friendly audio books to listen to on the drive. Getting everyone’s laundry done so we have clean clothes to wear. Pulling any recipes I may want to make while I’m down there. All of the stuff that makes me feel just a little bit better about leaving my life here for a month, or more.
And, if you read my 52 in 52 blog, you will have noticed that I’m quickly falling behind. I am sorry; I’ve just got nothing right now. I think I’m in such a state of overload with everything going on right now that my creative juices are pulling a deer in headlights move. I’ll catch up soon though and get back on track, I promise. In the meantime, if you have any story ideas to share, I’d love to hear them.
3/7/10
Going with the Flow
Day three of fever watch with The Girl. Yeah, I’m done with it now. She woke up at about 2am last night throwing up and her fever had started to soar. So my husband spent the rest of the night on the floor of her bedroom while I tossed and turned, convinced that every single noise was her seizing or throwing up.
Her temperature has continued to volley around, keeping us all on our toes. The Girl goes from relatively cool one minute and almost back to herself to screaming hot and listless the next. And more than anything that’s what has me worried. Because it’s the rapid rise of fever that causes febrile seizures, not necessarily how high it goes. And her fever is all over the place, rising and falling pretty rapidly. When The Boy had this it only lasted about 24 hours, so I thought we’d definitely be in the clear with The Girl by yesterday afternoon. Not so much apparently.
So, now I’m tired and still no closer to getting down to NM. I’m so scared that by the time we finally get down there that my dad won’t be my kids’ Papa anymore. He’ll be just a physical shell of the man they adore and look up to. I don’t want them to remember him that way, frail and dissipated. I want The Boy to remember tying flies and learning about nature. I want The Girl to remember reading stories and seeing the beauty of the desert through her Papa’s eyes. And perhaps I’m over-reacting, but the picture my mom has painted of my dad’s current state is not a pretty one. Even if it does change on a daily basis.
So I suppose this post is more of a vent than anything purposeful. I’m tired and scared and frustrated. I’m doing my best to just go with the flow and be as present as possible. I’m just tired of feeling like the flow is always going against me. That me going with the flow actually means just accepting that life is just hard right now. That the flow means learning to accept the fear and anger in the present.
Her temperature has continued to volley around, keeping us all on our toes. The Girl goes from relatively cool one minute and almost back to herself to screaming hot and listless the next. And more than anything that’s what has me worried. Because it’s the rapid rise of fever that causes febrile seizures, not necessarily how high it goes. And her fever is all over the place, rising and falling pretty rapidly. When The Boy had this it only lasted about 24 hours, so I thought we’d definitely be in the clear with The Girl by yesterday afternoon. Not so much apparently.
So, now I’m tired and still no closer to getting down to NM. I’m so scared that by the time we finally get down there that my dad won’t be my kids’ Papa anymore. He’ll be just a physical shell of the man they adore and look up to. I don’t want them to remember him that way, frail and dissipated. I want The Boy to remember tying flies and learning about nature. I want The Girl to remember reading stories and seeing the beauty of the desert through her Papa’s eyes. And perhaps I’m over-reacting, but the picture my mom has painted of my dad’s current state is not a pretty one. Even if it does change on a daily basis.
So I suppose this post is more of a vent than anything purposeful. I’m tired and scared and frustrated. I’m doing my best to just go with the flow and be as present as possible. I’m just tired of feeling like the flow is always going against me. That me going with the flow actually means just accepting that life is just hard right now. That the flow means learning to accept the fear and anger in the present.
3/4/10
Ode to Immune Systems and Baby!
The Boy must have an immune system like a friggin’ tank. I’m tellin’ ya’. When we put him to bed last night, he had a 104 degree fever, had been projectile vomiting all afternoon, had the croup and was basically the sickest he has been in a very long time. When he woke up this morning, he was fever free, vomit free, breathing freely and essentially back to himself. I still kept him home from school though, mostly because if he was still contagious I didn’t want him spreading this plague to someone else. Also, I didn’t want to have to go pick him up should his fever and/or vomit return. I know, I am such a super compassionate mom. But he’s definitely going back to school tomorrow. He’s kept all his food down today, had no return of the fever and been back to my sweet boy again. For which I am utterly grateful. He so rarely gets sick anymore that when he gets that sick, it freaks me out just a little.
The Girl seems to be fine so far (knocking on wood, furiously) and other than being stuffy, I appear to be fine too (screw it, I am just going to make sure some part of me is always touching and/or tapping wood until summer arrives).
On a decidedly non-sickness related note, my college roommate and her husband just got word last night that they were chosen by a birth mother to adopt her little boy!! So they are going to be parents in about a week and a half, if everything continues to go along as planned. I am so excited for them I could bust. I mean seriously. I’d do almost anything to be there with them to go shopping and put together furniture and move stuff around. I would just love to be there with them through this amazing time. But they know I’m there in spirit and I’ve told C to call me anytime for anything. I can’t wait to see pictures of the little guy, I’m just so excited! I said that already didn’t I? Fine. I’ll just go back to planning their new parent/baby care package.
The Girl seems to be fine so far (knocking on wood, furiously) and other than being stuffy, I appear to be fine too (screw it, I am just going to make sure some part of me is always touching and/or tapping wood until summer arrives).
On a decidedly non-sickness related note, my college roommate and her husband just got word last night that they were chosen by a birth mother to adopt her little boy!! So they are going to be parents in about a week and a half, if everything continues to go along as planned. I am so excited for them I could bust. I mean seriously. I’d do almost anything to be there with them to go shopping and put together furniture and move stuff around. I would just love to be there with them through this amazing time. But they know I’m there in spirit and I’ve told C to call me anytime for anything. I can’t wait to see pictures of the little guy, I’m just so excited! I said that already didn’t I? Fine. I’ll just go back to planning their new parent/baby care package.
3/3/10 - Sickness, Again
I can’t remember the first time The Boy got the croup, he wasn’t very old. And it’s a tradition that The Girl has kept up with. I can spot the early stages of croup a mile away. So when The Boy came home from school a few days ago with a bit of a hoarse voice, I knew we were in for something. I just kept my fingers crossed that maybe it wouldn’t fully manifest. But last night at about 2am, my husband and I were awakened to The Boy crying and gasping for air in our bathroom. I knew from the moment I heard the strider in his voice that it was the croup. And of course I was out of the correct dosing of prednisone for him. So we sat with him in a steamy bathroom (at least I got a good facial out of the deal) with him for about 20 minutes until we could get him calmed down enough to get his breath back. Oh, and he also had a fever.
We got The Girl dropped off at school this morning and then headed straight to the doctor. Yes on the croup, ruled out strep. His fever wasn’t too bad when we were in the office. By late afternoon however, his fever was up to 104 degrees and he had started projectile vomiting. And I’m here to tell you that cherry slushy and nachos does not come back up well. I don’t think my favorite couch blanket will ever be the same after being christened with that colorful mixture. He was able to keep down a good dose of Motrin though and we got him to bed. So I’ve got my fingers crossed that this will all have turned around by morning. And I’ve got my toes crossed that it just passes The Girl right on by, because she doesn’t need to be having anything that carries a 104 degree fever with it. It’s been almost exactly a year since her febrile seizure and I’ve no inclination to do a repeat performance as a way of commemoration thankyouverymuch.
I am ready for this week to give me a friggin’ break already.
We got The Girl dropped off at school this morning and then headed straight to the doctor. Yes on the croup, ruled out strep. His fever wasn’t too bad when we were in the office. By late afternoon however, his fever was up to 104 degrees and he had started projectile vomiting. And I’m here to tell you that cherry slushy and nachos does not come back up well. I don’t think my favorite couch blanket will ever be the same after being christened with that colorful mixture. He was able to keep down a good dose of Motrin though and we got him to bed. So I’ve got my fingers crossed that this will all have turned around by morning. And I’ve got my toes crossed that it just passes The Girl right on by, because she doesn’t need to be having anything that carries a 104 degree fever with it. It’s been almost exactly a year since her febrile seizure and I’ve no inclination to do a repeat performance as a way of commemoration thankyouverymuch.
I am ready for this week to give me a friggin’ break already.
3/1/10
Gratitude
So it appears that awe re staying put for now. Of course that could change tomorrow. But for now, we’re staying here, at least until spring break rolls around. Although my mom has tried mightily, I think my Aunt T is leaving tomorrow and will then be back the same time we are, with all the sisters in tow. I think the family reunion could be a really wonderful thing for my dad and all of his siblings (his brother excluded who cannot come). It will give them all a chance to be together for the first time since my grandmother died and it will be the first time that they’ve all come together without her as impetus. I think it will be a really good thing. Once we get through the awkward silences and dancing around the fact that their brother is dying. But I will be there and so will Aunt T, so between the two of us, we should be able to keep the atmosphere pretty positive I think.
My dad had a good day today. It looks like the upswing finally found him, for which I am grateful. He was not in good shape a few days ago. The oxygen was delivered today and he actually said he was going to give it a try and see if it made any difference in how he felt. His hospice nurse has said that she’d like to see him on it all the time. A lack of oxygen can cause all sorts of troublesome things in addition to shortness of breath. So he agreed to give it a try. I was flabbergasted in the best possible way. It was really good to talk to him today, he sounded good again. Like my dad. Funny and chatty. Which actually made me want to get in the car even more. Because it’s those days I really don’t want to miss. It’s those days that I really don’t want the kids to miss.
But at this point I’m grateful to be able to share them with him in any way I can. We’re just taking it one day at a time. Today was a good day.
My dad had a good day today. It looks like the upswing finally found him, for which I am grateful. He was not in good shape a few days ago. The oxygen was delivered today and he actually said he was going to give it a try and see if it made any difference in how he felt. His hospice nurse has said that she’d like to see him on it all the time. A lack of oxygen can cause all sorts of troublesome things in addition to shortness of breath. So he agreed to give it a try. I was flabbergasted in the best possible way. It was really good to talk to him today, he sounded good again. Like my dad. Funny and chatty. Which actually made me want to get in the car even more. Because it’s those days I really don’t want to miss. It’s those days that I really don’t want the kids to miss.
But at this point I’m grateful to be able to share them with him in any way I can. We’re just taking it one day at a time. Today was a good day.
2/27/10 - To Be Expected
We’re still in CO. My dad has slept about 34 of the last 48 hours. I think it is getting to the point where it just takes so much energy for him to be awake and ambulatory. I know, rationally, that this is to be expected. And I know that this is another step downhill. Dad, mom and Aunt T all tell me that he seems to be doing a bit better today. But every time I talk to him, he’s still gasping for breath. Rationally, I know that this too is to be expected. He has lung cancer, having trouble breathing is definitely to be expected. It’s just pretty brutal to hear.
I was talking to my Aunt T the other day about all of my dad’s sisters coming to visit around Easter and I told her that she should prepare them because how he is now is going to be hard for them to reconcile against the big brother they’ve always known. I know it’s going to be hard for even me to reconcile because it’s been a month since I’ve seen him. He’s always been the robust, outdoorsy kind of guy. He does yard chores because he likes to be outside and working with his hands. He loves to see the effect his effort has on his environment. And he has a profound love and respect for nature. All of these things have always been evident in his physicality. But now, that is dwindling. A little at a time. With his strength, his vitality is also shrinking. So far, that may be the hardest thing for me to see. Watching his sheer physical presence dwindle.
I think, perhaps, that even if he does manage to rally after this jaunt downhill, that the kids and I will head down there soon. I find myself thinking about the time just flying by and then it sinks in that this will by my dad’s last February on earth. And the thought that I’m missing that, that my children are missing that, makes me unbearably sad.
I know I can’t bring my dad the peace he needs, but perhaps I can find some of my own.
I was talking to my Aunt T the other day about all of my dad’s sisters coming to visit around Easter and I told her that she should prepare them because how he is now is going to be hard for them to reconcile against the big brother they’ve always known. I know it’s going to be hard for even me to reconcile because it’s been a month since I’ve seen him. He’s always been the robust, outdoorsy kind of guy. He does yard chores because he likes to be outside and working with his hands. He loves to see the effect his effort has on his environment. And he has a profound love and respect for nature. All of these things have always been evident in his physicality. But now, that is dwindling. A little at a time. With his strength, his vitality is also shrinking. So far, that may be the hardest thing for me to see. Watching his sheer physical presence dwindle.
I think, perhaps, that even if he does manage to rally after this jaunt downhill, that the kids and I will head down there soon. I find myself thinking about the time just flying by and then it sinks in that this will by my dad’s last February on earth. And the thought that I’m missing that, that my children are missing that, makes me unbearably sad.
I know I can’t bring my dad the peace he needs, but perhaps I can find some of my own.
2/26/10
Dad
“I don’t want to scare you, but…”
That was how my mom started our conversation when she called last night at 9:30pm to tell me Dad had just had an hour long spell of not being able to breathe. At one point she thought she had lost him. My immediate thought was that I should grab the children, pour their sleeping bodies into the car and drive like a bat out of hell to NM post haste. It didn’t scare me necessarily, but it did put me into ready to rock and roll mode. I slept with the phone by our bed last night (if you could call it sleeping) and got up early hoping my mom would call early to give me an update. Which she did. Dad slept fairly well once he got settled in last night.
My Aunt T flew in this morning and Dad was still sleeping when my mom left for the airport. He slept until nearly 10am and then took a 3 ½ hour nap at about noon. So he's been asleep for most of the day. Both times I talked to him he sounded awful. Like gasping for breath awful. And again, it made me want to just jump in the car with nothing but my tooth brush and children and get there as fast as I could.
But he’s had really bad days before and then rallied. So I’m trying to stay out of panic mode while simultaneously making plans for how to get out of here as quickly as possible if need be. The last time I called the hospice nurse had just arrived, so I gave Dad instructions for someone to call me when she leaves with a full report.
Once we decided that we probably would not be leaving today, I took The Girl out for a day of fun. We met some friends for lunch and played then went and got ice cream just the two of us (sshh, don’t tell her brother). Came home and sat out in the sun (sun!) and talked with some neighbor friends. It was good day, even if part of me is still on pins and needles.
That was how my mom started our conversation when she called last night at 9:30pm to tell me Dad had just had an hour long spell of not being able to breathe. At one point she thought she had lost him. My immediate thought was that I should grab the children, pour their sleeping bodies into the car and drive like a bat out of hell to NM post haste. It didn’t scare me necessarily, but it did put me into ready to rock and roll mode. I slept with the phone by our bed last night (if you could call it sleeping) and got up early hoping my mom would call early to give me an update. Which she did. Dad slept fairly well once he got settled in last night.
My Aunt T flew in this morning and Dad was still sleeping when my mom left for the airport. He slept until nearly 10am and then took a 3 ½ hour nap at about noon. So he's been asleep for most of the day. Both times I talked to him he sounded awful. Like gasping for breath awful. And again, it made me want to just jump in the car with nothing but my tooth brush and children and get there as fast as I could.
But he’s had really bad days before and then rallied. So I’m trying to stay out of panic mode while simultaneously making plans for how to get out of here as quickly as possible if need be. The last time I called the hospice nurse had just arrived, so I gave Dad instructions for someone to call me when she leaves with a full report.
Once we decided that we probably would not be leaving today, I took The Girl out for a day of fun. We met some friends for lunch and played then went and got ice cream just the two of us (sshh, don’t tell her brother). Came home and sat out in the sun (sun!) and talked with some neighbor friends. It was good day, even if part of me is still on pins and needles.
2/19/10
2/18/10 - Strobe Light Writing
So I am sitting here alternately working on my story for the week and chatting with a friend and suddenly what was just a totally clear laptop screen is a strobe light. I’m looking through a strobe light. Am, in fact, looking through a strobe light right now. So I’ll apologize ahead of time for any spelling or grammatical mistakes because I can’t really, you know, see what I’m typing. I’m going to try to get this typed as quickly as possible so that I get my writing in for the day, although I’m not at all sure I’ll be able to post it today with the whole I can’t really see thing going on.
2/17/10
The Mess That I Am
So I have this anger. This anger that I keep expecting to start dissipating as the time goes by. This anger that I’ve been diligently trying to just let be in the hopes that it would burn itself out. Here’s the problem though, it turns out when you “diligently” try to do something, you’re not actually just letting it be, are you?
2/10/10
One of those Days
I wanted to do nothing but lie on the couch, read and eat cookies today. Alas and alack, that’s just not allowed when you have a 3 ½ year old dictator nipping at your heels constantly for food, drink and entertainment. I mean seriously, when is this pup ready to get her own damn juice?! There are just days that are harder than others to remain civil when The Girl asks for the umpteenth time for a snack or a different show or exclaims in her best Scarlett O’Hara impersonation that she is bored. Today was one of those days.
Today is one of those days when I am crabby and find myself teary while reading a story to The Boy before bed. One of those days when I would have been happy to not have to talk or listen to anyone. One of those days when my best bet would’ve been to lie on the couch, read and eat cookies.
1/25/10
1/24/10 - Awe and Shock
Oh Peyton Manning, how do I love thee? Let me count the ways…
1/23/10
1/21/10 - Blizzard
Holy shit ton of snow Batman!! I just spent the last 8.5 hours driving down to my parents’ house. The drive usually takes me just over 5 hours. But just shy of about halfway there I ran into a gigantic freaking blizzard and I never really came out of it. Over a couple of the passes I was putting down fresh tire marks in the undisturbed snow. I was struggling to just figure out how to stay on the road because the landscape was just one huge, consistent swath of white in front of me with no demarcation of where the road ended and the plunging drop to my death began. It was fun.