4/10/10
4/8/10 - Seafood and Recap
My Dad had a doctor’s appointment today with his main doc to debrief and reassess after last weekend’s debacle as well as the doc being out of town for the last two and half weeks. The doc was irritated that everything was handled the way it was and was also irritated that his prescription of a gout medication made everyone assume that my Dad had been diagnosed with gout. I kind of wanted to tell him to either get over himself or else write better diagnostic notes in the file. But he’s also endeavored to mess about with my Dad’s meds, so we’ll see how it goes. He’s taking my Dad off the blood thinners so that he can switch him to anti inflammatories and is switching his pain med to a slow release pain patch instead of the every 4 hours morphine he had been on. I’m worried about taking him off the blood thinners as that opens him up to risks of heart attack and stroke. But hopefully the benefits outweigh the risks. And the doc said we’d know the benefits fairly soon, so if they don’t outweigh, then he’ll go back to the blood thinners. It’s all such experimentation at this stage, which I find utterly infuriating. I mean, my dad has to pay the price of his comfort so that the docs can figure all of this out, in a case that is not unique that they’ve all seen so many times before and still can’t get right. And when my Dad has little more than his comfort left, I tend to get my hackles raised when they start messing with it.
So I’m keeping my fingers crossed and looking forward to scallops this evening.
4/4/10 - Happy Easter!
My Mom had taken The Boy outside to enjoy the gorgeous morning while I set up the indoor egg hunt and strategically placed their bigger Easter gifts. The Girl woke up lat morning after falling back asleep on the couch and came to me with an egg in hand saying “What this?” She caught on quickly though as she kicked off the hunt with a good head start on her brother. They had a good time.
Dad got up after the hunt was over and was still not doing well, so Mom called the new on call hospice nurse to request a home visit today. Dad moved as little as possible and read the paper. The Girl played with her new Barbie princess and horse and The Boy begged my Mom shamelessly to get started on his new medieval castle herb garden which would require painting. It was a normal Sunday morning except for the pain and discomfort etched across my Dad’s face.
But my Dad has gotten better as the day has gone on, The Girl seems to be fever free although her cough has evolved into a nasty wet thing that needs little provocation, The Boy had a grand time painting and planting his indoor garden. The hospice nurse arrived and took a thorough account of my Dad ending with a long talk about pain management and a declaration that the gout med should be utterly discontinued.
Now it’s on to dinner and sneaking the ears off the kids’ chocolate bunnies.
4/3/10 - Not a Good Day
He could hardly walk today. He was shaking so badly he couldn’t hold a water glass. He was in intense pain and his stomach was screwed beyond belief. He spent most of the day in bed. I spent most of the day shooing the children outside or into my mom’s yoga studio to play and watch TV just to get them out of the house. And worrying. There was lots and lots of worrying.
The Girl is not any better and I knew I should take her far away from my Dad, especially given his sudden turn for the worse. But I could not leave him like this. So I’m staying and keeping my fingers crossed that I don’t compound this by giving him her sickness.
My Mom has been on the phone off and on with the on call hospice nurse all day in amidst sitting with my Dad and getting him to drink as much as possible as they think the shaking and chills are coming from dehydration. I’ve been sitting at the kitchen table mostly, feeling helpless. And feeling that I maybe don’t want to be around for this part. As awful as that confession makes me feel and sound, I don’t know if I can sit and watch him suffer like this as the end draws nearer. And I don’t know if there’s room at his bedside for more than one. I just don’t know.
4/1/10
3/29/10 - Caretaker
Now I know that was all bullshit of course. I embrace my caretaking abilities on a daily basis. And it turns out to be an extraordinarily good thing when you have one parent have a massive heart attack one day, move in with you to recuperate for 3 weeks another day and then six months later have the other parent diagnosed with end stage lung cancer.
So here I am, taking care of my Dad. By cooking all of his favorite food for him while he still has an appetite and wants to eat. By doing things around the house to make his life easier. By helping to keep track of meds and new symptoms to tell the hospice nurse. All of these everyday things that seem so simple but are the best way I know how to take care of him right now. Because all of these things still allow me to be his daughter whilst doing them. Despite my caretaking proclivities, I have no desire to morph into a full time nurse to my father. I just want to be his daughter. Love him as his daughter. Support him as his daughter. It’s a delicate balance to strike to be sure. But I hope I’m at least in its general vicinity.
3/7/10
3/6/10 - Anger
Then there is the anger that is rooted in who we are. Rooted somewhere deep enough that it can’t be so easily let go of or dismissed. Rooted somewhere solid enough that it takes years maybe even a lifetime to be able to put it down and direct our energy into something more positive.
And I’ve been going round and round with the latter as of late. There is this anger that is rooted in my childhood. That is connected to my parents and that has been flying in my face as of late in response to the fact that my father is dying and everything that comes with that. You would think that the hardest part would be the issues related directly to my dad. Those that come from the fact that he was gone for a lot of my early childhood. Those that come from the fact that he’s not an emotionally ebullient man and always left me guessing as to my place in his heart. Those that come from the fact that he had exceptionally high expectations for me that I struggled, and often failed, to meet.
But instead, and probably harder than all of those combined, the anger that is arising is with my mother. Perhaps that’s because she’ll still be here and is therefore the safer candidate at which to vent anger. Or perhaps, losing my father is just opening the floodgates to that deeply seated anger that has been dormant for so long. I don’t know. What I do know is that it’s making it extremely difficult for me and my mom right now. And I’ve yet to find the words to explain it all to her without her feeling like I’m just attacking her. And if I want to one day be able to truly let go of this anger, I must first find a way to express it.
2/17/10
The Mess That I Am
So I have this anger. This anger that I keep expecting to start dissipating as the time goes by. This anger that I’ve been diligently trying to just let be in the hopes that it would burn itself out. Here’s the problem though, it turns out when you “diligently” try to do something, you’re not actually just letting it be, are you?
1/23/10
Food and Writing
Ah, civilization, how I have missed thee! Ok, that’s being dramatic. We’ve only been snowed in for a couple of days, but I’ve been completely computer and phone free during those days which almost NEVER happens, so it feels like longer. I half expected to get on the computer today to discover The Boy had started college and all of my friends were moving to Florida to retire. Instead it’s only been a couple of days and life has just kept on keeping on while I’ve been away.
1/20/10
Preparing to Travel Again
The Girl and I are headed back to my parents’ house tomorrow. The mountains pretty much all the way through are expecting a large snow storm tonight and tomorrow, which has me a wee bit worried. As well as the fact that the past couple of days every time I mention heading back to Nana and Papa’s, The Girl starts crying. That’s no good. I know it doesn’t really have anything to do with Nana and Papa. It has to do with her missing more school, missing her brother and dad and being away from her own space and stuff. I get it. We’re both starting to feel a little bit like refugees at this point I think. But this weekend is my parents’ wedding anniversary and I promised that we would help them celebrate since it will be their last. And several of our oldest family friends arrived to their house today as well. These are people that I grew up with, absolutely adore and am really looking forward to seeing. But I’m in no way shape or form ready to battle icy and snow packed roads.
1/15/10
Bad Day
I’m having a bad day. And here’s the mind fuck that has been chasing its tail through my bad day pity party: I should be above bad days. Or, more to the point, I should be able to rise above bad days. I should be able to just allow them to move past me without buying into their bullshit. I should just make my mind some soothing tea and let it rant and rave without actually giving it any unwarranted attention. I should be able to slough off bad days without a care. But apparently I can’t.
1/5/10
The Other Side of Stephen King
My mom has been touting her love of Stephen King for years in my general direction. She’s tried everything under the sun to reel me in – he’s a fantastic writer, not EVERYTHING he writes is horror, he has a wonderful sense of humor, he cusses with abandon! And I’ve read one or two of his books. Mostly the ones that were absolutely not even in the same city as horror and they were great. But I don’t do horror. Ever.
12/27/09
Decision Made
I am sitting on my couch. In my house. Writing on my laptop and posting to the blog using our Wi-Fi instead of “borrowed” internet from the neighbors. I’m home. For three and half days.
12/26/09
Mix Anxiety with Guilt and...
I am feeling guilty. Because I desperately want to go home with my husband tomorrow for a few days until he was planning on coming back to my parents’ house on Thursday anyway. I would love to sit in my house and just enjoy the quiet. I would love to not have to do anything except catch up on my DVR’d TV shows from before I left and watch any and all of the copious movies we got/gave for Christmas. I would love to delve into my music wish list and spend some of the iTunes gift certificates I got. I would love to take some time to start researching and writing notes about the first story in the new blog I’m going to kick off on New Year’s Day. I would love to take three days and just be in a bit of solitude and utter quiet.
12/25/09 - Merry Christmas!
Holy present explosion Batman!! I got a great picture of the two of them on first sight of the magnificent pile of wrapped goodies arranged perfectly behind two grand offerings from Santa. The looks on their faces were utter, unabashed joy. It was what Christmas mornings should be. It was what was so sorely lacking in last year’s Christmas.
12/24/09 - Merry Christmas Eve!
Merry Christmas Eve!
12/15/09
Rambling On
Well I kicked into high gear today and jumped head first into all the Christmas stuff I’d been procrastinating on.
12/14/09
12/13/09 - Mini-Holiday
Here we are, in Albuquerque. My dear friend, R, works for a swanky new hotel in town and she offered to get us rooms for a steal, so we took her up on the offer knowing it would be a nice place. And holy cow am I glad we did. The hotel is gorgeous (not to mention that it’s an entirely sustainable, green hotel so it just sort of makes you feel like a good person to stay there), the rooms are lovely and they have killer views of some amazing murals that have been painted on the sides of buildings downtown. I cannot say enough nice things about the place!
12/12/09
12/11/09 - All for a Good Cause
Every year the big hospice organization that serves the area my parents live in holds a major fundraiser in partnership with the local community college. The art department donates handmade pottery bowls to the event for them to sell for $10 each and you get soup with your bowl as well. It is a lovely idea that so completely embraces the whole idea and purpose of hospice in my opinion. As a career fundraiser it’s so often that you see organizations holding fundraising events that have absolutely nothing to do with their mission. And I have often found myself saying “now tell me again what the hell a silent auction has to do with child welfare?”
12/9/09
12/7/09 - Playing Hooky
So apparently I have not yet lost my ability to coerce people into playing hooky (well at least people that are not my husband; I’ve yet to be able to get him to play hooky in the entire 11 years I have known him). Because my mom was supposed to go to work today and then The Girl and I would meet her in town to run some errands. But we got a good amount of snow and my mom decided it was enough to justify playing hooky and spending the day with me and The Girl. She treated us to a lovely lunch at a place that I would have never expected to do such a booming business in a town such as Farmington.
12/6/09 - Random Thoughts
Target is a time suckage vortex from hell. And I love it. The Girl, my mom and I lost several hours in there today. We meant to run errands today. Do pricing and research for the last of our Christmas shopping. You know, generally be really productive and tick things off the to do list one by one. Instead, we spent hours wandering around Target (admittedly doing some research and pricing). I haven’t just wandered around Target for a long time. Because typically when I just wander around, looking at whatever happens to catch my eye, I end up spending entirely too much money. So I’ve taken to only going in there with a very specific list and I make a beeline for the locations of my items and then get the hell out of there with a quickness.
11/30/09
Stages 1 and 2
My darling, dear and most appreciated friend M bought The Girl and me lunch again today. She also brought me some books on grief including one to read to the kiddos. One of which is by Elizabeth Kubler Ross who is pretty much the guru of death and dying. It was she who came up with the 5 stages of grief. I have heard her speak and she is without a doubt the kindest, gentlest soul I’ve ever heard utter words of any kind.